Create a custom recruitment website for your unique study!
DigiKnowIt News includes many different ways to provide youth with information about clinical trials.
When customizing your study’s website, you can select from a library of options, including interactive learning modules, digital comic books, and video testimonials from youth.
A number of the options are available in developmentally appropriate versions for children and teens. Some options are designed to provide general information about clinical trials (e.g., rights, roles) and some are designed to educate youth about specific medical procedures. These options allow you to create a custom website that fits your study’s specific methods and participant recruitment needs.
Investigations: Web-based modules for learning about clinical trials through entertaining and interactive activities.
Mystery of Clinical Trials/Clinical Trials 101
Youth learn facts, definitions, and concepts related to participating in a clinical trial, and why it is important to participate in them.
Know Your Rights
Youth learn about their rights and safety when participating in a clinical trial, and what is informed consent and assent.
Good and Not So Good/Benefits and Costs
Youth learn about the potential benefits and costs of participating in a clinical trial.
Who to Talk to/Communication is Key
Youth learn the different roles of people involved in conducting clinical trials, and how communication about the trial with parents, researchers, and medical professionals is important.
Needles
Youth learn about needle procedures such as blood draws (relevant when used in a clinical trial).
Scans
Youth learn about scans such as MRIs (relevant when used in a clinical trial).
Behavioral Treatments
Youth learn about clinical trials that use interventions that do not include drugs or medicines. These trials examine how behavioral treatments improve health behaviors (e.g., substance use, sleep, nutrition, exercise).
Sedation and Anesthesia
Youth learn about different types of sedation and anesthesia such as local and general anesthesia, conscious sedation, and sedative and anti-anxiety medication.
Organ Testing
Youth learn about different tests of organ functioning such as spirometry, pulse oximetry, electrocardiogram (ECG), urinalysis, stool tests, and biopsies.
Shared Decision-Making
Participating in pediatric clinical trials can impact the entire family. Youth (along with a parent or caregiver) will learn about the shared decision-making process, when making the decision to participate in a clinical trial.
Mystery of Clinical Trials/Clinical Trials 101
Youth learn facts, definitions, and concepts related to participating in a clinical trial, and why it is important to participate in them.
Know Your Rights
Youth learn about their rights and safety when participating in a clinical trial, and what is informed consent and assent.
Good and Not So Good/Benefits and Costs
Youth learn about the potential benefits and costs of participating in a clinical trial.
Who to Talk to/Communication is Key
Youth learn the different roles of people involved in conducting clinical trials, and how communication about the trial with parents, researchers, and medical professionals is important.
Needles
Youth learn about needle procedures such as blood draws (relevant when used in a clinical trial).
Scans
Youth learn about scans such as MRIs (relevant when used in a clinical trial).
Behavioral Treatments
Youth learn about clinical trials that use interventions that do not include drugs or medicines. These trials examine how behavioral treatments improve health behaviors (e.g., substance use, sleep, nutrition, exercise).
Sedation and Anesthesia
Youth learn about different types of sedation and anesthesia such as local and general anesthesia, conscious sedation, and sedative and anti-anxiety medication.
Organ Testing
Youth learn about different tests of organ functioning such as spirometry, pulse oximetry, electrocardiogram (ECG), urinalysis, stool tests, and biopsies.
Shared Decision-Making
Participating in pediatric clinical trials can impact the entire family. Youth (along with a parent or caregiver) will learn about the shared decision-making process, when making the decision to participate in a clinical trial.
Mystery of Clinical Trials/Clinical Trials 101
Youth learn facts, definitions, and concepts related to participating in a clinical trial, and why it is important to participate in them.
Know Your Rights
Youth learn about their rights and safety when participating in a clinical trial, and what is informed consent and assent.
Good and Not So Good/Benefits and Costs
Youth learn about the potential benefits and costs of participating in a clinical trial.
Who to Talk to/Communication is Key
Youth learn the different roles of people involved in conducting clinical trials, and how communication about the trial with parents, researchers, and medical professionals is important.
Needles
Youth learn about needle procedures such as blood draws (relevant when used in a clinical trial).
Scans
Youth learn about scans such as MRIs (relevant when used in a clinical trial).
Behavioral Treatments
Youth learn about clinical trials that use interventions that do not include drugs or medicines. These trials examine how behavioral treatments improve health behaviors (e.g., substance use, sleep, nutrition, exercise).
Sedation and Anesthesia
Youth learn about different types of sedation and anesthesia such as local and general anesthesia, conscious sedation, and sedative and anti-anxiety medication.
Organ Testing
Youth learn about different tests of organ functioning such as spirometry, pulse oximetry, electrocardiogram (ECG), urinalysis, stool tests, and biopsies.
Shared Decision-Making
Participating in pediatric clinical trials can impact the entire family. Youth (along with a parent or caregiver) will learn about the shared decision-making process, when making the decision to participate in a clinical trial.
Comic Books: Digital, interactive comic books in which youth can choose a character to follow in adventures through a clinical trial.
The Chronicles of the Clinical Trial
Youth follow their character through the lifecycle of a clinical trial: being introduced to a study by their doctor; discussing the good and not-so good things about participating in the trial; asking questions about the study; signing the assent form; completing research tasks; and finishing the study.
MRI Mission
Youth follow their character through the experience of getting an MRI scan. The character imagines themselves as an astronaut going into space during the MRI as a technique for calming anxious thoughts about the procedure.
MRI Mystery
Youth choose their character and follow them through a story about getting an MRI scan. The character first imagines the MRI as something mysterious and unknown, but then, after asking questions about the scan and gathering more information, the youth reports feeling ready to get the MRI.
The Power of Pizza
Youth follow their character through the experience of getting a blood draw. The character visualizes baking and eating a pizza as a distraction during the blood draw.
The Chronicles of the Clinical Trial
Youth follow their character through the lifecycle of a clinical trial: being introduced to a study by their doctor; discussing the good and not-so good things about participating in the trial; asking questions about the study; signing the assent form; completing research tasks; and finishing the study.
MRI Mission
Youth follow their character through the experience of getting an MRI scan. The character imagines themselves as an astronaut going into space during the MRI as a technique for calming anxious thoughts about the procedure.
MRI Mystery
Youth choose their character and follow them through a story about getting an MRI scan. The character first imagines the MRI as something mysterious and unknown, but then, after asking questions about the scan and gathering more information, the youth reports feeling ready to get the MRI.
The Power of Pizza
Youth follow their character through the experience of getting a blood draw. The character visualizes baking and eating a pizza as a distraction during the blood draw.
The Chronicles of the Clinical Trial
Youth follow their character through the lifecycle of a clinical trial: being introduced to a study by their doctor; discussing the good and not-so good things about participating in the trial; asking questions about the study; signing the assent form; completing research tasks; and finishing the study.
MRI Mission
Youth follow their character through the experience of getting an MRI scan. The character imagines themselves as an astronaut going into space during the MRI as a technique for calming anxious thoughts about the procedure.
MRI Mystery
Youth choose their character and follow them through a story about getting an MRI scan. The character first imagines the MRI as something mysterious and unknown, but then, after asking questions about the scan and gathering more information, the youth reports feeling ready to get the MRI.
The Power of Pizza
Youth follow their character through the experience of getting a blood draw. The character visualizes baking and eating a pizza as a distraction during the blood draw.
Spotlights: Video interviews with youth sharing their real-life experiences being a participant in a clinical trial.
Spotlights
| Youth are interviewed about topics related to the process of making the decision to be in a clinical trial (e.g., asking questions; safety) as well as their experiences with specific procedures in a clinical trial (e.g., blood draws). There are 38 spotlight videos to choose from. |
Resources for Parents/Caregivers
Parent Guide: Includes information about DigiKnowIt News and how parents can support their child’s use of the website.
Parent Spotlights: Video interviews with parents of youth who have participated in clinical trials or studies discussing their families’ experiences.
Shared Decision-Making (along with their teens): Participating in pediatric clinical trials can impact the entire family. Teens (along with a parent or caregiver) will learn about the shared decision-making process when making the decision about whether to participate in a clinical trial.